Narcolepsy's Life Lessons


Over the course of my life, I have had more than my share of great memories and incredible experiences, but over the past few year’s things have been challenging.


2 years ago, my narcolepsy symptoms reached an all-time high and I was really struggling with my fatigue. At this time, I had also been on stimulants for 8 years and had hit a point where they were no longer working. I no longer felt like myself and was experiencing severe side effects. My only real choice was to stop taking them… the withdrawal effects last for almost a year.


I felt like my body had aged 20 years in a matter of months. I was always tired, feeling constant back pain, stiffness and generally beat up.


This in combination with the chaos of the world, my mental health was also in the dumps.


I felt I had lost my ability to have energy, to feel motivated again, to be able to focus, to live without pain & fatigue and to be happy again.


I felt certain this was my new permanent life.


Looking back at it, I am not sure what kept me pushing forward. There was something deep inside of me that just kept telling me to keep going.


I was at my limit for weeks and months at a time but I continued to believe that if I continued to work on my health, things would improve for me.


After what felt like an eternity, things did start to change for me… slowly but surely


I have made it to a point now where I feel like I have my life back. I have my energy, my health, my motivation, and my body back. All the things I thought were permanently gone, finally returned.


But there is a major difference… I have become so appreciative of everything that I have in my life.


I can see that my mind and my body are the most incredible and amazing gifts that I will every receive. It is something that should never be abused, shamed or hated no matter the condition that it is. It should always be treated as our most prized possession because without it, we do not exist.


I can see that even on my bad days I can appreciate the life that I have because no matter my position it can always get worse.


It took me feeling like I had lost them forever to really appreciate all the things that I have.


I no longer see my body as broken, I cherish it and will do everything that I can to give it the love and care it deserves.


I think the point is that maybe there is purpose in pain, that it is not the punishment we see it as. That in order to appreciate the easy times in our lives we must go through hard times. For us to feel proud of our accomplishments, we need face a challenge that make us question if we will be able to make it through.


And to be thankful for all that we have, we must know what it’s like to lose it all.


I know that there are many others who have it harder than me and that have been struggling for a lot longer. I wish I was able to understand why life was like this… but I don’t think anyone will ever be able to answer that question.


I have heard that the harder the challenge, the stronger the person. I have found comfort in believing that is true. That maybe the suffering that comes from this life will have a profound purpose in whatever comes next.


I believe that we can never fail and that we are not failure. As long as we are giving life our best, we should be proud of who we are.


Never give up on yourself


-Jerry

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HEY, I'M JERRY

After living on stimulants for 8 years, I decided to drastically change my approach to living with Narcolepsy. After 2 years of living off medication and working on my health I have never felt better. I hope these articles help you get to a fulfilled & energized life. 

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